(source: https://www.dnaindia.com/mumbai/interview-people-need-to-change-attitude-towards-progeria-hit-kids-says-nihal-bitla-2117013)
“Happiness can’t be behind sorrow, it is your choice to make a better tomorrow, Enjoy this beautiful day with a lovely smile,” that is how Nihal (Pankaj Bitla) on the Facebook page of his “team” greets with the picture under this status. And this can also be a philosophy that we can, next to many other things, appreciate about him.
Rare Disease Causes Early Aging
This boy is, together with other 130 children all around the world, suffering from a disease called Progeria. It is a very rare syndrome of genetic disorder that causes early aging. The people with this illness usually live to their teen ages or early twenties. However, the scientists are interested enough in the research, because thanks to this syndrome they might finally comprehend the process of aging.
(source: https://news.softpedia.com/news/new-clues-about-progeria-a-disease-that-turns-kids-into-old-people-494104.shtml)
Nihal is a boy who is not going to give up his life. He, more than the others, understood, how important it is to enjoy the life that was given to us, and his story nowadays inspires many people that do not suffer from anything.
He is Special!
Nihal recently explained the issues and successes of his life in an article published by the Humans of Bombay Facebook page. The doctors determined his disease when he was 1-year-old. His parents decided to give him a normal life as the other children. “When I was in the 4th standard and the movie Paa released, my classmates began teasing me and calling me Auro — I felt terrible at that point, so I came home and told my parents. My dad told me to tell them ‘to chill’ and that ‘I’m special’ – so I did. I don’t blame those who don’t understand me, they like me are children after all,” Nihal explained.
Now, he does not attend school often; nevertheless, he has many friends who he plays cricket with. He likes robots, hoping that one day he will have his own, and he likes painting as he paints all day. Nihal lives his life mainly with the things that make him happy.
(source: https://www.dailynewstracker.com/nihal-bitla-and-his-long-and-winding-journey-with-progeria/)
“I love every single day without fear.”
“To be honest, I don’t know much about the illness I have, except that I have the rare power of being young and old at the same time. That makes me believe that I can send a message to people. A message that life can go by quickly and that each day is more valuable than the next. I also believe that everything happens for a reason, and I’m happy everyday. The way I look at it I’ve been given a finite time to do everything I love every single day without fear. Above all, I hope that people know that our time here is special, and life is incredibly beautiful in every single way,” Nihal described his life power and his willingness to live every single day, on the Human of Bombay.
(source: https://www.theweek.in/features/society/Finding-the-other-150-progeria-children.html)
He has a list of activities that he wishes to do – to go to Disneyland, to see the Honda Asimo Robot and to meet Aamir Khan and to thank him for his movie ‘Taare Zameen Par’ that gave him courage, as he describes his desires
They will meet!
Just yesterday, Aamir Khan answered to this brave young boy that he is ready to meet him. “Hi my friend, you haven’t given your name… I would love to meet you. Please let me know when and where, and I will be there. Love. a. P.S. I am so glad that you liked ‘Taare Zameen Par’,” the Indian actor wrote.
Last Updated on by Radhika Sharma
